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Walk for Skin in Regents Park, read about it here.
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In March 2007 we celebrated our 10th Anniversary and 5th National Day!
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Did you make it to the Fun Day in Bristol in 2006? Families from all over the UK gathered together at the @Bristol complex.
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On Saturday 28th January 2006 at St. Gregory's Social Club Farnworth, Bolton, we held the Phoenix Nights Fundraiser. The event was themed on Peter Kay's popular comedy TV series 'Phoenix Nights' and the venue for the event was the actual club where the series was filmed.
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Ichthyosis is a term used to describe continual scaling of the skin. It comes from a Greek word "ichthys" which means fish although not all affected people have fish-like scales. It is quite rare and can be inherited (genetic or congenital) or develop later in life (acquired). The inherited forms of ichthyoses are usually evident at or soon after birth and they tend to persist throughout life although many types improve with age.
The scaling of ichthyosis affects most if not all areas of the skin and is fairly consistent over the years. This is in contrast to other skin disorders such as eczema and psoriasis where scaling affects limited areas of the skin and changes its pattern frequently. However the more common, milder forms of ichthyosis do generally improve in summertime. Several of the rarer types of inherited ichthyosis also cause red inflamed skin and one form produces blistering of the skin in babies.
Harlequin ichthyosis (HI) — the most severe form of keratinizing disorders, often lethal in the neonatal period — is characterized by a profound thickening of the keratin skin layer, a dense "armour"-like scale that covers the body, and contraction abnormalities of the eyes, ears, and mouth.
Harlequin ichthyosis (HI) is inherited, and affected newborn infants are encased in "armour"-like thick, yellow plates of scales with deep red fissuring. The skin is pulled tight such that the face loses its normal appearance and appears frog-like or scaly, stretching the eyelids and lips and flattening of the ears and nose. The extremities are swollen due to constriction by massive thickening of the skin. Liveborn infants usually die within the first days of life from respiratory, infectious, and/or dehydration-related complications.