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Lee Westwood tournament bag auctioned for the ISG
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Ex-Liverpool striker Robbie Fowler held a charity golf day on the 18th May 2009 to raise funds for the ISG.
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In September 2008 we held a Funday at Alton Towers read about it here.
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Walk for Skin 2008 in Regents Park, read about it here.
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In March 2007 we celebrated our 10th Anniversary and 5th National Day!
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Fun Day in Bristol in 2006.
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Phoenix Nights Fundraiser Saturday 28th January 2006.
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Ichthyosis is a term used to describe continual scaling of the skin. It comes from a Greek word "ichthys" which means fish although not all affected people have fish-like scales. It is quite rare and can be inherited (genetic or congenital) or develop later in life (acquired). The inherited forms of ichthyoses are usually evident at or soon after birth and they tend to persist throughout life although many types improve with age.
The scaling of ichthyosis affects most if not all areas of the skin and is fairly consistent over the years. This is in contrast to other skin disorders such as eczema and psoriasis where scaling affects limited areas of the skin and changes its pattern frequently. However the more common, milder forms of ichthyosis do generally improve in summertime. Several of the rarer types of inherited ichthyosis also cause red inflamed skin and one form produces blistering of the skin in babies.
Harlequin ichthyosis (HI) — the most severe form of keratinizing disorders, often lethal in the neonatal period — is characterized by a profound thickening of the keratin skin layer, a dense "armour"-like scale that covers the body, and contraction abnormalities of the eyes, ears, and mouth.
Harlequin ichthyosis (HI) is inherited, and affected newborn infants are encased in "armour"-like thick, yellow plates of scales with deep red fissuring. The skin is pulled tight such that the face loses its normal appearance and appears frog-like or scaly, stretching the eyelids and lips and flattening of the ears and nose. The extremities are swollen due to constriction by massive thickening of the skin. Liveborn infants usually die within the first days of life from respiratory, infectious, and/or dehydration-related complications.