Latest news

Meet our Celebrity Supporters

Walk for Skin in Regents Park, read about it here.

FULL STORY

In March 2007 we celebrated our 10th Anniversary and 5th National Day!

FULL STORY

Did you make it to the Fun Day in Bristol in 2006? Families from all over the UK gathered together at the @Bristol complex.

FULL STORY

On Saturday 28th January 2006 at St. Gregory's Social Club Farnworth, Bolton, we held the Phoenix Nights Fundraiser. The event was themed on Peter Kay's popular comedy TV series 'Phoenix Nights' and the venue for the event was the actual club where the series was filmed.

FULL STORY

Register with us

To receive notification when the website is updated.

Click here to register with us

 

Did you see the TV Documentary about two families with Harlequin Ichthyosis that was shown on Wednesday 19th March on Channel 5 at 9pm?

Extraordinary People: The girls with too much skin 

 

Date: 4th October 2005

Real Families: My Skin Could Kill Me aired a documentary about two families affected with the incurable and potentially fatal genetic skin condition known as Harlequin Ichthyosis. The condition causes them to grow too much skin at an accelerated rate.

If you are interested in making a donation to the registered charity, please see our donations page »

Meet the families who were featured in the documentary »

Unfortunately we don't have copies of the programme that we can sell.