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Meet our Celebrity Supporters
Walk for Skin in Regents Park, read about it here.
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In March 2007 we celebrated our 10th Anniversary and 5th National Day!
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Did you make it to the Fun Day in Bristol in 2006? Families from all over the UK gathered together at the @Bristol complex.
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On Saturday 28th January 2006 at St. Gregory's Social Club Farnworth, Bolton, we held the Phoenix Nights Fundraiser. The event was themed on Peter Kay's popular comedy TV series 'Phoenix Nights' and the venue for the event was the actual club where the series was filmed.
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Eurordis
Alliance of patient associations dedicated to improving the quality of life of all people living with rare diseases in Europe.
European Network on Ichthyosis
Harlequin Ichthyosis Trust
The purpose of this fund is to provide sums for research and education on Harlequin Ichthyosis.
http://www.bartsandthelondon.org.uk
Skin Care Campaign
The Skin Care Campaign (SCC) is an umbrella organisation representing the interests of all people with skin disorders in the UK
http://www.skincarecampaign.org
Foundation for Ichthyosis and Related Skin Types
US based support group for ichthyosis conditions
http://www.scalyskin.org
Ichthyosis Information
Another US based website with some sensible information.
http://www.ichthyosis.com
Contact a Family
Contact a Family is a UK-wide charity providing support, advice and information for families with disabled children.
http://www.cafamily.org.uk
The
European
Academy of Dermatology and Venereology
Founded in 1987, EADV is a non-profit association whose mission is to provide European physicians with Continuing Medical Education (CME) opportunities, specialised information services and professional support networks.
Chinas largest website about Ichthyosis Vulgaris (not in English)